And part of it is that too many I-Cell kiddos have passed in the last few months. I used to write a little about each kid who passes, to note their short time here on earth. I wanted to share the beauty that I saw in each of their faces. But however I tried to focus on the overwhelming joy they all brought to their families and beyond, it's just so sad. I don't need to repeat how much each passing hurts me.
But just recently, Mikey passed away. Mikey had an older sister, who also passed from I-Cell just before she turned 5 years old. And even though he was getting up there in age for an I-Cell child, I still can't believe he's gone. He was almost 9 years old.
I have always thought of Mikey as the spokesperson for I-Cell. I thought of him as our "Ambassador of Spunk". In fact, I mentioned this to his mother, and lo and behold, she created a Facebook page to honor this title, which was made official by the 18th congressional district of Florida.
Mikey receiving his official title from Congress - thanks to Lisa Lickstein!!
Posted by Mikey, The Ambassador of Spunk on Thursday, March 19, 2015
Mike had a larger than life and undeniably lovable personality. He deserved his own TV show. I thought that perhaps he was the most capable of expressing the wonders of I-Cell children, even to those who don't know us. I imagined that if people met Mikey or watched his videos, they would understand "us". And hopefully if his mother continues to share those videos, the world will understand I-Cell through Mikey.
In my house, Mila will sometimes ask me out of the blue, "Can we watch some Mikey videos?" Here are a few of my favorites.
Not always rainbows, kittens and unicorns!'
Posted by Trish Doyle on Tuesday, February 5, 2013
Mikey will never walk but my son can move!!
Posted by Trish Doyle on Wednesday, February 22, 2012
BAWK!! Uncle Fwankie at it again
Posted by Trish Doyle on Monday, March 16, 2015
Step aside KC!!
Posted by Trish Doyle on Thursday, September 4, 2014
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| Rest in peace Mikey, Ambassador of Spunk. April 26, 2006 - April 3, 2015. |
