A few of my friends have been asking about these two sweet girls, so here's an update. They are both back home from the hospital. That's a great relief. Whew! Amber was on a C-pap and Gabby was on a bi-pap while at the hospital. They both looked like mini 13lb darth vaders. Now they are both home and back to getting oxygen from the nasal cannula.
Gabrielle is back to her normal self more or less. Amber is still on morphine and maybe using the C-pap at night. I'm glad to hear that they are back to bringing smiles to their families. I know that both families really thought that they were going to lose their baby girls this time.
I have not been thinking about Niko's mortality lately. And I'm glad I don't. It's not a pleasant thought. I'm conscious that she has I-Cell and I focus on her conditions and therapies. But I don't think about her short life span anymore. I don't immediately equate sickness to death. However the scary week these two girls have had (and another one year old I-Cell girl, Lucia, was also hospitalized at the same time) is making me face reality. I have to appreciate this time with Niko. She is hands down the sweetest little thing I've ever met. She melts my heart everytime she smiles. And I want to hold her in my arms tightly for as long as I can.
Gabrielle is back to her normal self more or less. Amber is still on morphine and maybe using the C-pap at night. I'm glad to hear that they are back to bringing smiles to their families. I know that both families really thought that they were going to lose their baby girls this time.
I have not been thinking about Niko's mortality lately. And I'm glad I don't. It's not a pleasant thought. I'm conscious that she has I-Cell and I focus on her conditions and therapies. But I don't think about her short life span anymore. I don't immediately equate sickness to death. However the scary week these two girls have had (and another one year old I-Cell girl, Lucia, was also hospitalized at the same time) is making me face reality. I have to appreciate this time with Niko. She is hands down the sweetest little thing I've ever met. She melts my heart everytime she smiles. And I want to hold her in my arms tightly for as long as I can.
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