She is my happy little girl. Despite her blasted cold that has caused atrocious congestion for over four months (how does so much snot come out of such a tiny body?!), she is in a near constant state of serenity. Her modest undemanding nature touches me, touches every fiber of my body. She never cries, never asks for anything. She is deeply satisfied when given a simple smile. When she does have a request, it is done with the most quiet unobtrusive manner. "Um excuse me. If you don't mind, may I trouble you for just a quick diaper change? I really don't mean to interrupt your conversation. But I'm ashamed to say that I have soiled myself in the most inconvenient of times. I would gladly sit here in my own blunder if it were not for the astringent burning of my bottom. I am most sorry."
In our most recent appointment with our geneticist, he mentioned how lucky we were that Niko has such a contented disposition because I-Cell children are prone to irritability. What the…? Really? I found that rather surprising since Niko is always so cheerful. And most of the kids I see in the Facebook group seem bright and happy. Whatever the case is, I'm very thankful for my sweet joyful Niko.
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| Skin and sun make a happy Niko. |
A couple videos of what Niko has been up to.
Speech therapist teaching Niko to vocalize her requests
Scooting in physical therapy
Oh my goodness...she is so incredibly amazing. You are a wonderful mom and giving your little girl such a beautiful life. xo
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