RIP Charlie

I am so heart broken.  Charlie passed away on Friday.  He was three years old.  It hasn't even been a year since his sister left this world.  Charlie and his sister, Amber, both had I-Cell.  They were the only children of a very amazing couple.

I am so stunned.  Charlie never seemed to have any health issues.  He was doing so well and breaking grounds (like standing up and learning to really walk with a walker).

Over the last year, I've watched the fall of too many I-Cell kids.  It never gets any easier.  Each passing of these little angels slices a fresh cut in my heart.  And each time, I'm made aware that I will have to face this harsh reality in the near future.  I really hate I-Cell.  Life is so unfair.  Children should never have to suffer.

RIP sweet Charlie.