Update on Wynnie

Wynnie has been in the ICU for one month now.  He started smiling about a couple weeks ago.  And on Friday, the 5th, he was extubated successfully.  He is now connected to a bi-pap.  I think I-Cell kids make the cutest Darth Vaders.

His mother wrote, "At the small cute age of 4, Wynnie has given us glimpse of his life's purpose. He has brought us together and has endeared himself to everyone at Childrens (Hospital) that has come into contact with him. He has reminded us how precious and unpredictable life can be. He has shown us how scary the reality of his I-cell disease inevitability is."

I do see the bigger picture now.  These kids are not destined to a disadvantaged life only to teach us a lesson.  Let's not make this about us.  These kids have been placed on a fast bullet train, racing through life at an excerlerated pace.  They are little but they are such a force.  Their impact on those around them grows exponentially.  They are here for a brief time and they make HUGE waves, each wave gathering more strength until the tsunami hits.  We are not as strong as them.  All we can do is try our best to soak up the intensity of these children and offer them as much love as we possibly can before we get left behind.  I feel a deep strange feeling for all special needs kids.  I can't quite find the right word to describe it.  Right now "admiration" is the best I can come up with.